Acute myeloid leukaemia (AML) resources and support organisations

Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.  

Support line: 0808 2080 888 

Support line opening hours are:

• 10 am to 4pm on Monday, Wednesday, Thursday and Friday

• 10 am to 7pm on Tuesday

• 10 am to 1 pm on Saturdays and bank holidays

Email address: support@bloodcancer.org.uk

Find out more on the Blood Cancer UK website

The Leukaemia Cancer Society is a charity that provides information, support and has a befriending service. It's also involved in organising events to recruit donors for the stem cell registry, fundraising for research and raising awareness of blood cancers. 

Support line: 0203 686 5303

Email address: enquiries@leukaemiacancersociety.org

Leukaemia Cancer Society

Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support. 

It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and buddy support. The buddy support service is available if you want to chat to someone who has had a similar experience.

Freephone helpline: 08088 010 444, open Monday to Friday 9am to 4:30pm

Chat via WhatsApp on 07500068065

Go to Leukaemia Care website

Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor. 

It is looking for people in good health aged 16–30 to join the stem cell register. In particular, they need more people from minority ethnic communities to sign up.

General enquiries: 0303 303 0303, open Monday to Friday 9am to 5pm

Email: patientinfo@anthonynolan.org 

Learn more at the Anthony Nolan website

The NHS Blood and Transplant service runs the blood donation scheme and organises the supply of blood products. They also run the NHS Stem Cell Donor Registry. This was previously called the British Bone Marrow Register (BBMR). They help find people stem cell matches.

Telephone: 0300 123 23 23

Find out how to give blood

• Find out about the NHS Stem Cell Registry and how to become a donor

DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland, India, Africa and the United States.

People between the ages of 18 to 55 and are in general good health can join the register.

General enquiries email: info@dkms.org.uk

General enquiries phone: 020 8747 5620, Monday to Friday 9am to 5pm Patient and family enquiries email: patients@dkms.org.uk

Go to the DKMS website

The African Caribbean Leukaemia Trust (ACLT) aims to increase the number of bone marrow and stem cells donors from all ethnicities, with a focus on African and Caribbean people in the UK who need a transplant.

Phone: 020 3757 7700

Email: info@aclt.org

Learn more at the ACLT website

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form

Visit the Macmillan Cancer Support website

Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

Find out about Macmillan information for teens and young adults

This is the American National Cancer Institute's patient information on leukaemia. 

It's detailed and comprehensive but there are few images.

Go to the National Cancer Institute leukaemia information

Young Lives vs Cancer is a charity that provides clinical, practical, financial and emotional support for children and young people and their families who are affected by cancer. You can chat to the social care team through their live chat Monday to Friday 10am to 4pm. Or you can email or phone them.

Phone: 0300 330 0803 Monday to Friday 9am to 5pm. 

Email: getsupport@younglivesvscancer.org.uk

Find out about Young Lives vs Cancer on their website

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust The Place 175 High Holborn London WC1V 7AA

Phone: 020 7612 0370 Monday to Friday 9am to 5pm Email: hello@teenagecancertrust.org

Read more on the Teenage Cancer Trust website

Macmillan Cancer Support have a variety of resources that you can access online. These include:

• booklets that you can view online or download

• podcasts you can listen to 

• blogs

• personal stories

• audiobooks

They cover many topics and you can access them by clicking on the tabs in the link below. 

Resources at Macmillan Cancer Support

Blood Cancer UK have several booklets and factsheets. Some of these include:

• Your blood cancer diganosis: What happens now?

• Adult Acute Lymphoblastic Leukaemia (ALL)

• Adult Acute Myeloid Leukaemia (AML)

• Acute promyelocytic leukaemia (APL)

• Blood stem cell and bone marrow transplants: the seven steps

• Side effects factsheets

• Treatment factsheets

• Eating well with neutropenia

Booklets and factsheets from Blood Cancer UK

Here is some of the booklets and factsheets from Anthony Nolan.

• Essential Facts for Transplant Patients

• Life After Transplant: An Essential Guide to Graft Versus Host Disease (GvHD)

• Managing fatigue after a stem cell transplant

• Preparing for isolation

• Essential Facts for Transplant Recovery

Factsheets from Anthony Nolan

The Children's Cancer and Leukaemia Group have booklets and factsheets. You can view or download them online. Some of these include:

• Ben's stem cell transplant

• Donating your stem cells to your brother or sister

• Jess's bone marrow donation

• Total body irradiation

• Stem cell transplant. A guide to stem cell transplantation for teenagers and young adults

Resources from the Children's Cancer and Leukaemia Group