Eye cancer resources and organisations

A UK charity for families and people affected by retinoblastoma. It offers support and information, funds research and raises public awareness of this rare cancer.

The Royal London Hospital
Whitechapel Road
London E1 1BB

Tel: 020 7377 5578 (Monday to Friday, 9am to 5pm)
Email: support@chect.org.uk

TAVIP (Technology Association of Visually Impaired people) is a charity registered in Scotland that provides services and welcomes members from the whole of the UK. TAVIP promotes, supports and encourages the use of technology amongst blind and partially sighted people.

221 Bristol Avenue
Blackpool
FY2 0BF
England

Helpline: 01253 951131
Website: www.naes.nhs.uk
Contact form

The NHS Artificial Eye Service is part of the NHS. They supply and fit artificial eyes, as well as checking the artificial eyes for people who wear one. Their website includes information about how your artificial eye is fitted and caring for your eye afterwards. They also have a helpline.

The Macular Disease Society is a self help society for people with eye conditions called Macular Disease. They are dedicated to providing information and practical support to help people with poor vision make the most of their remaining sight.

Lost eye is an American website and discussion forum. It is a completely free, noncommercial website for the information and support of people who have recently lost an eye, or who may lose an eye due to surgery, injury or disease. You can get help, support and tips from people who have adjusted to losing an eye. As it is an American site some of the issues are not relevant to the UK.

Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line)
Head office email: info@changingfaces.org.uk

The contact details for the skin camouflage service are:

Phone: 0300 0120 276
Email: skincam@changingfaces.org.uk

Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.

Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.

Phone: 020 3417 7757

Email: info@savingfaces.co.uk

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Jay Adkisson
iUniverse, 2006
ISBN: 978-0595392643

Jay Adkisson compiled this collection of emails and message threads from LostEye.com's website, along with articles and other helpful information to help people who have lost an eye to cope with the experience. The message is that life can continue as normal after the loss of an eye. The book is American so some issues are not relevant in the UK.