Nasal and paranasal sinus cancer resources and support organisations
There are several organisations, support groups, books, videos and more to help you cope with nasal or paranasal sinus cancer.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Head and neck cancer organisations and sites
Changing Faces
Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.
Phone: 0300 0120 275 (support and advice line)
Head office email: info@changingfaces.org.uk
The contact details for the skin camouflage service are:
Phone: 0300 0120 276
Email: skincam@changingfaces.org.uk
Get Ahead
Get Ahead is a national charity supporting people with head and neck diseases and cancers. They have some patient information on their website, and a patient group who are willing to talk to others about their experiences.
Email: info@getahead.org.uk
Phone: 0121 794 9596
Let's Face It
This UK organisation for people with facial disfigurement offers:
- telephone support
- a service to link up people in similar situations
- dietary and medical advice
- social activities
- resources and a newsletter
Email: sandra.smith@lets-face-it.org.uk
Oral Health Foundation
This UK based charity works to improve standards of mouth care. Their website has good information on cancer and caring for your mouth.
The Oral Health Foundation was called the British Dental Health Foundation until 2016.
Saving Faces - The Facial Surgery Research Foundation
Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.
Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.
Phone: 020 3417 7757
Email: info@savingfaces.co.uk
The Mouth Cancer Foundation
Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.
Tel: 01924 950 950 (Monday to Friday 9am - 5pm)
Email: info@mouthcancerfoundation.org
The Swallows Head and Neck Cancer Support Group
The Swallows is a UK charity set up to help support people affected by head and neck cancer. Their website has information about head and neck cancer, what support is available and patient stories. They hold monthly meetings and have a patient and carer support line. They also have an online forum where you can share experiences.
Support line: 07504 725059
Email: info@theswallows.org.uk
General support organisations
Macmillan Cancer Support
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Quit smoking
Quit smoking is an NHS website dedicated to helping people stop smoking. The website has information on how to quit smoking, as well as information on the NHS Quit smoking app.
International organisations and websites
American Cancer Society
The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.
Memorial Sloane Kettering Cancer Centre
This American organisation provides information about head and neck cancers.
National Cancer Institute (NCI)
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
SPOHNC
An American support network for people with cancers of the head and neck. It puts people in touch with each other and provides useful information.
Books from libraries, bookshops or online booksellers
V Speechley and M Rosenfield
MaGraw-Hill, 2004
ISBN 978-0074713723
Get the facts about cancer and cancer treatments, set out in question and answer format. This book includes advice on diet, exercise, sex and relationships, holidays, employment and money matters.
Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090805
Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2007
ISBN 978-0859699990
Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
Professor R Bor, Dr C Eriksen and C Stapelkamp
Sheldon Press, 2010
ISBN 978 1847090973
This book addresses the painful emotions linked with a cancer diagnosis. It covers areas such as coping with distressing thoughts, learning to relax, family relationships and coping with an advanced cancer.
Jeffrey Tobias
Bloomsbury Publishing PLC, 2001
ISBN 978-0747554103
This book covers treatment, side effects and many different types of cancer.
E Carper, K Hu and E Kuzin
Jones and Bartlett Learning, 2007
ISBN 978 0763743079
Provides doctors and patients views and answers questions about treatment and side effects, and quality of life after treatment. As it is American, not all the information will be relevant for patients in the UK.
Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090485
This handbook deals frankly and sensitively with the issues of cure, follow up, treatment side effects and recurrence. It looks at the support available to people who have finished their treatment.
Booklets and factsheets from other organisations
From Macmillan Cancer Support
Understanding cancer of the head and neck
Healthy eating and cancer
Coping with advanced cancer
Managing cancer pain
Managing the symptoms of cancer
Talking with someone who has cancer
Cancer and your sex life
Understanding chemotherapy
Understanding radiotherapy
Coping with hair loss
Coping with fatigue
How are you feeling? The emotional effects of cancer
Talking about your cancer
Talking to children and teenagers when an adult has cancer
Money worries? How we can help
From the Royal Marsden Hospital Trust
Chemotherapy: your questions answered
Radiotherapy: your questions answered
Clinical trials: your questions answered
Your operation and anaesthetic: your questions answered
You can download these booklets from the Royal Marsden website.
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