Neuroendocrine cancers

Neuroendocrine cancers are rare cancers that develop in the neuroendocrine system. They are also called neuroendocrine neoplasms (NENs). There are 2 key groups - neuroendocrine tumours (NETs) and neuroendocrine carcinomas (NECs).

You usually start by seeing your GP. They might refer you to a specialist doctor and organise tests. 

There are many different types of neuroendocrine cancer. They are usually named after the part of the body where they develop. 

Treatment depends on the type of neuroendocrine cancer you have, where it is, its size and whether it has spread (the stage).

Carcinoid syndrome is a group of symptoms that some people get when they have a neuroendocrine tumour (NET). These symptoms happen when the tumour makes large amounts of hormones.

Lung NETs are rare cancers that start in the neuroendocrine cells of the lung. Some types of lung NETs are called carcinoid tumours.

Stomach neuroendocrine cancers start in the neuroendocrine cells of the stomach. Neuroendocrine cells in the stomach help control the release of digestive juices and how fast food moves through the stomach.

Small bowel NETs are rare. These tumours start in the neuroendocrine cells of the small bowel.

Large bowel and rectal NETs are rare cancers that start in the neuroendocrine cells. Some types of NETs are called carcinoid tumours.

There are different types of NETs of the pancreas. They are usually grouped into functioning NETs and non functioning NETs.

 MCC is a rare type of skin cancer that starts in Merkel cells. Its is also called a type of neuroendocrine tumour (NET). 

Get practical and emotional support to help you cope with a neuroendocrine tumour.