Resources and support for people with non-Hodgkin lymphoma

Lymphoma Action provides information and support for people affected by lymphoma. They provide a helpline service. They also offer online support meetings and a buddy service for putting patients in touch with each other. They run educational events and webinars.

They have a website which includes a database of lymphoma clinical trials.

Telephone for support or information: 0808 808 5555 (10 am to 3 pm Monday to Friday) Telephone for general enquires: 01296 619 400 Email: information@lymphoma-action.org.uk 

Find out more at the Lymphoma Action website

Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.  

Support line: 0808 2080 888 

Support line opening hours are:

• 10 am to 4pm on Monday, Wednesday, Thursday and Friday

• 10 am to 7pm on Tuesday

• 10 am to 1 pm on Saturdays and bank holidays

Email address: support@bloodcancer.org.uk

Find out more on the Blood Cancer UK website

The African Caribbean Leukaemia Trust (ACLT) aims to increase the number of stem cells, blood and organ donors from all ethnicities, with a focus on African and Caribbean people in the UK who need a transplant.

Telephone: 020 3757 7700 Email address: info@aclt.org

Learn more at the ACLT website

Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor. 

It is looking for people in good health aged 16–30 to join the stem cell register. In particular, they need more people from minority ethnic communities to sign up.

General enquiries: 0303 303 0303, open Monday to Friday 9am to 5pm

Email: patientinfo@anthonynolan.org 

Learn more at the Anthony Nolan website

DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland, India, Africa and the United States.

People between the ages of 18 to 55 and are in general good health can join the register.

General enquiries email: info@dkms.org.uk

General enquiries phone: 020 8747 5620, Monday to Friday 9am to 5pm Patient and family enquiries email: patients@dkms.org.uk

Go to the DKMS website

NHS Blood and Transplant

The NHS Blood and Transplant service runs the blood donation scheme and organises the supply of blood products. They also run the NHS Stem Cell Donor Registry. This was previously called the British Bone Marrow Register (BBMR). They help find people stem cell matches.

Telephone: 0300 123 23 23

Find out how to give blood

• Find out about the NHS Stem Cell Registry and how to become a donor

The US National Cancer Institute (NCI) website includes comprehensive guidance on treatment for non-Hodgkin lymphoma in adults and children.

Read NCI guidance on non-Hodgkin lymphoma in adults

• Read NCI guidance on non-Hodgkin lymphoma in children

This UK group gives information and support to people affected by Waldenstrom's Macroglobulinaemia. Their volunteers can answer questions about their experience of specific treatments.

This UK group is supported by the International Waldenstrom's Macroglobulinaemia Foundation (IWMF).

Find out more at the Waldenstrom's Macroglobulinaemia UK website

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust The Place 175 High Holborn London WC1V 7AA

Phone: 020 7612 0370 Monday to Friday 9am to 5pm Email: hello@teenagecancertrust.org

Read more on the Teenage Cancer Trust website

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form

Visit the Macmillan Cancer Support website

Jeffrey Tobias Bloomsbury Publishing PLC, 2001 ISBN 978-0747554103

This book covers treatment, side effects and many different types of cancer.

Elizabeth M Adler Johns Hopkins University Press, 2016 ISBN: 978-0801881800

This US book was written by a doctor diagnosed with lymphoma. It covers the emotional, practical, physical and medical aspects of lymphoma. Some aspects may not apply to UK patients.

Lance Armstrong Foundation Hodder & Stoughton, 2011 ASIN B005ZTC04U

An inspiring collection of personal stories about cancer and survivorship. It covers all aspects of cancer.