Follow up for lung NETs

You usually have follow up appointments every few months after treatment for a lung neuroendocrine tumour.

This is to check how you are and see whether you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.

How often you have follow up

You usually see your doctor about 2 to 6 weeks after treatment finishes. 

After that, you have appointments with your doctor or specialist nurse at regular intervals, usually every 2 to 3 months. You are likely to have regular check ups for at least 5 years.

What happens

Your doctor or nurse examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything. 

You might also have tests at some visits. The tests might include:

• CT scans or MRI scans
• PET scans 
• chest x-rays
• blood tests

Between appointments

Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.

Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.

You can also find people to share experiences with by using our online forum, CancerChat.

Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a UK wide charity providing support and information to those affected by neuroendocrine cancer. They also have a helpline.

Cancer Research UK nurses